Starting and Sustaining Genetic Support Groups

Weiss and Mackta have created a sensitive, practical and comprehensive guide for starting and maintaining genetic support groups. The book may be used as a reference manual or when read from beginning to end, as a complete roadmap to developing a new group. The initial chapter details an illuminating history of self-help and support groups. Subsequent chapters consider why people seek support groups and the dynamics of peer support. They also cover the 'nuts and bolts' details of organizing, funding, advertising and programming genetic support groups. Appendices include a list of known genetic voluntary organizations, useful resources, a glossary and annotated bibliography and an overview of the success of one group (the Fanconi Anemia Research Fund, Inc.). Summary statements and side-bars as well as sample questionnaire formats or tips to follow are sprinkled liberally throughout the text. Real life examples and stories enrich which might otherwise be a straight forward textbook format. This volume would serve as an excellent resource, not only as a review for professionals (there is an excellent section on the role of the genetic counselor) but most especially as a user-friendly tool for lay groups seeking to start their own support group.

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