International Society of Nurses in Genetics

New - ISONG White Paper on GINA

The Ethics and Public Policy (EPP) Committee presents a White Paper on GINA that includes a discussion concerning the discordance between provisions in the Genetic Information Nondiscrimination Act and the Patient Protection and Affordable Care Act regarding Employee Sponsored Wellness Programs. This information is relevant for healthcare professionals practicing in the US.

Thank you to the contributors Mary Beth Steck
and Susan B. Dickey. Also, thank you to Marie Twal for facilitating and to the Board of Directors for their review and suggestions.

ISONG White Paper on GINA (PDF)

Position Statements

The ISONG Position Statements have been approved by the ISONG Board of Directors as clear and thoughtful statements on important genomic healthcare issues. Thanks to all ISONG members who contributed to this excellent work.

Genetic Biobanking for Research (PDF)

Newborn Screening: The Role of the Nurse (PDF)

Informed Decision-Making: The Role of Nursing  (PDF)

Access to Genomic Healthcare: The Role of the Nurse  (PDF)

Privacy and Confidentiality of Genetic Information: The Role of the Nurse  (PDF)

Genetic Counseling for Vulnerable Populations: The Role of the Nurse  (PDF)

ISONG Direct-to-Consumer Marketing of Genetic Tests (PDF)

Provision of Quality Genetic Services and Care: Building a Multidisciplinary, Collaborative Approach among Genetic Nurses and Genetic Counselors  (PDF)