International Society of Nurses in Genetics

ISONG Member Publications

Genomic Essentials for Graduate Level Nurses
Congratulations to the ISONG members who contributed as editors and authors: Sheila A. Alexander, Yvette P. Conley, Jennifer R. Dungan, Julia Eggert, Dale H. Lea, Ann H. Maradiegue, Sarah Race, Debra L. Schutte, Diane C. Seibert, Kathleen Sparbel, Susan T. Tinley, Martha Turner and Karen L. Zanni.

Designed as both a nursing reference and course text, this book presents genetics and genomic essentials specifically for graduate-level nurses. Preliminary chapters cover the basics of genetics, risk assessment and genetic testing. With chapter contributions by topic experts, the remainder of the book is organized by disease system and covers genetics and genomics in prenatal care, neurology, cancer, respiratory function, cardiology, pharmacogenomics, hematology and others. Key chapters on ethical and legal issues and future technology are also included. This volume is well-suited for nursing faculty, nursing students, nurse leaders, and other nursing professionals with a need for further information on genetics and genomics in a nursing role and across a variety of specialties. Click here for more information including the complete author listings.

Genetics and Genomics in Nursing and Health Care
By ISONG members Terry Beery, PhD, RN, ACNP and M. Linda Workman, PhD, RN, FAAN published by F. A. Davis. Perfect for both stand-alone courses or integrated into courses across the curriculum.

Genetics and Genomics in Oncology Nursing Practice
This latest volume from Kathleen Calzone, Agnes Masny, and Jean Jenkins broadens the topic of genetics from a discussion of risk assessment to encompass such issues as cancer biology, clinical applications of genetic study, and the scope of oncology nursing practice.

ISONG Educational Resources

Genetics and Nursing


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Genetics Program for Nursing Faculty

At the Cincinnati Children's Hospital Medical Center, the Genetics Program for Nursing Faculty is a multifaceted genetics educational program for nursing faculty made possible through funding from the Ethical, Legal, and Social Implications Research Program of the National Human Genome Research Institute at the National Institutes of Health. Visit http://www.cincinnatichildrens.org

Genetics/Genomics Competency Center -- open source repository of curricular materials. Visit www.g-2-c-2.org.

Medical

Ethnomed - content about cultural and social factors affecting health in selected ethnic groups. Visit http://ethnomed.org/

Genetic

Biochemgen - a searchable list of biochemical genetic tests and the laboratories that offer each.
Visit http://biochemgen.ucsd.edu/

GeneEd - Genetics Web site that links to vetted genetic materials for high school students and the general public.
Visit http://geneed.nlm.nih.gov

GeneTests - a genetic testing resource which provides listings of clinical and/or research laboratories performing testing for heritable disorders.
Visit www.genetests.org/

HUM-MOLGEN - is a moderated, interactive communication and information list serv in human genetics. Anybody interested in human genetics and molecular biology can subscribe to the mailing list, called HUM-MOLGEN and communicate directly with all other members at the same time. HUM-MOLGEN has 10 different topics. They are: NEWS in Human Genetics, CALLs for collaboration, ANNOuncements, LITErature, REVIews, ETHIcal and social issues, DIAGnostics, COMPutational Genetics, SPECial topics in Genetics, BIOTechnology. Subscribers can choose the topics from which to receive messages.
Visit www.hum-molgen.de/

The Human Genome Program of the Department of Energy - includes Primer on Molecular Genetics and To Know Ourselves.
Visit www.jgi.doe.gov/index.html

Human Genome Project Information – site for material about the history, progress, research and resources of the Human Genome Project and maintained by the Human Genome Management Information System (HGMIS) for the U.S. Department of Energy Human Genome Program.

Information for Genetic Professionals - at the University of Kansas Medical Center is updated regularly for genetic counselors, clinical geneticists, and medical geneticists with links to a variety of clinical, research and educational resources.
Visit www.kumc.edu/gec/geneinfo.html

The Genetic Counseling Cultural Competence Toolkit is an online resource portal for genetics service providers interested in enhancing their ability to provide culturally and linguistically appropriate health care services. The website, developed with a JEMF (Jane Engelberg Memorial Fellowship) grant of the National Society of Genetic Counselors, features a network of links and resources on cross cultural communication and multilingual resources, health disparities and national standards, health literacy, clinical tools, teaching tools, etc. The website also includes 9 extensive cases that have been approved for Category 1 CEUs for genetic counselors and as an interdisciplinary continuing education opportunity for nurses. Continuing education credits are also available for medical interpreters and translators; students and other interested adult learners can earn a learning certificate for completing the case series.
Visit http://www.geneticcounselingtoolkit.com

National Coalition for Health Professional Education in Genetics - (NCHPEG) is a national effort to promote health professional education and access to information about advances in human genetics.
Visit www.nchpeg.org/

National Genetics and Genomics Education Centre - The NHS National Genetics and Genomics Education Centre was established in 2005 and funded by the Department of Health as one of the major initiatives of the 2003 Genetics White Paper 'Our Inheritance, Our Future – Realising the potential of genetics in the NHS'. One of the main aims of the Centre was to improve the understanding of genetics among healthcare professionals and its role in modern healthcare.

Supporting education in genetics continues to be a key component of our work. However we have recently expanded this to include genomic healthcare. The Human Genomics Strategy Group 2012 report 'Building on our inheritance: Genomic technology in healthcare' confirmed the important role of the Centre in continuing to support non-genetics healthcare professionals and pre and post-registration healthcare professionals.
Visit www.geneticseducation.nhs.uk or http://www.geneticseducation.nhs.uk/for-healthcare-educators

The Genetics Home Reference - for users who would like more general information about genetics. "Help Me Understand Genetics" provides a basic explanation of how genes work and how mutations cause genetic disorders. It also includes current information about genetic counseling, genetic testing, gene therapy, and the Human Genome Project.
Visit http://ghr.nlm.nih.gov/

National Office of Public Health Genomics - This regularly updated site provides access to current information on the impact of human genetic research and the Human Genome Project on public health and disease prevention. It is also home to the web site for HuGE NeT (Human Genome Epidemiology Network) presenting information on epidemiologic aspects of human genes.
Visit www.cdc.gov/genomics/default.htm

NHGRI - for the National Human Genome Research Institute at the National Institutes of Health. Additional resources related to genetics from the NHGRI include: Spanish Talking Glossary of Genetics. This is a very helpful glossary using an innovative combination of text, illustrations and audio commentary in an accessible, user-friendly format. It is available free on NHGRI’s web site.
Visit www.nhgri.nih.gov/

OMIM
Online Mendelian Inheritance in Man. This database is a catalog of human genes and genetic disorders.
Visit www.ncbi.nlm.nih.gov/sites/entrez?db=omim

SACGHS
The Secretary’s Advisory Committee on Genetics, Health, and Society (SACGHS) final report, Genetics Education and Training, is now available. Click to view the report.

Telling stories, understanding real-life genetics is a web-based multi-media education resource that uses real-life stories from the public and professionals to promote knowledge and understanding of genetics and how it impacts on people's lives.  The collection of 100 stories from individuals, patients, carers, professionals, in text and video formats are mapped to education frameworks for nurses, midwives, student doctors and primary care physicians.
www.tellingstories.nhs.uk

 

Genetic Credentialing Announcement

ANCC and ISONG announce the first Certification through Portfolio credential for Advanced Genetics Nursing.

Click here to link to this announcement.